From the Field: Rattle Wraps – Patient Advocacy for Infant Caregivers

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Project Title

Rattle Wraps: Patient Advocacy for Infant Caregivers

Name of Organization, Agency, or Institution

James’s Project

Primary Contact Name and Title

Mary Ellen Mannix, Founder & Educator

Project Aim and Goals

James’s Project sets out to reduce the US infant mortality rate and improve maternal health by raising awareness of patient safety issues in these areas. This is done by using the tools of education, communication and collaboration. Based in the greater Philadelphia area, we offer Patient Advocacy for Infant Caregivers classes (called “Rattle Wraps”). These community based education classes offered to expectant parents, grandparents, guardians, and clinicians offer insights & information on best practices & communication to safely navigate the healthcare system with an expectant parent or new baby.

We are also developing online curriculum for moms, dads, patients, clinicians and families. We also offer bedside advocacy and healthcare coaching during hospitalization and active treatment. Finally, James’s Project is a catalyst in the movement towards transparent dialogue post-treatment between physicians and patients to ensure healing for all involved. Restorative conferencing, Family Group Conferencing and Family Group Decision Making are models used in other industries that are successfully adapted for use in the healthcare setting.

Blueprint Area(s) Addressed

Strategies Used

Results

Indicators for success will be measured by the steady increase in enrollment for the Rattle Wraps and eventually by viewing the infant and maternal mortality rates for our local area from before 2010 and after.

ARTICLES ABOUT THE PROJECT

Wayne Woman Advocates for Newborn Health Care (Mainline Media News, 10/19/10)

Website

www.jamessproject.com

http://www.empoweredpatientcoalition.org/component/content/article/28-pennsylvania/216-james-stb-project

http://pulseoxadvocacy.com/resources/

Toolkit Description

The real list to bring to the hospital, birthing facility or midwife:

  1. After 24 hours of life and before heading home with your baby, ask for a pulse ox screening for congenital heart disease (the most common birth defect affecting approximately 1 in 100 births).
  2. Before leaving home, make sure you have the number of the hospital or birthing facility’s patient advocate office and give it to your husband or partner. If you or your husband/partner feels ill at ease at any time, the patient advocate can help.
  3. Understand what the Family (or Patient) Activated Rapid Response Team is. If delivering in a hospital, find out if the hospital has one and how to activate it. Make sure your partner knows how.
  4. Bring a list of all the medications you take to the hospital or birthing facility. Ask to see the bottle of any medication given to you in the hospital.
  5. Keep an eye on hands. Proper hand hygiene is much more than using hand sanitizer. Hand washing has been shown to be more effective in reducing the spread of infection than anything else. You and your baby deserve an infection free start to life!

For More Information

Mary Ellen Mannix, at maryellen@jamessproject.com

Filed in Blueprint, Care coordination, Clinical practice guideline/policy change, Community education/outreach, Consumer advocacy or political action, Decision making and choice, Educational materials for health professionals, Health professions education, Risk management/liability reform, Shared decision making, Staffing/care coordination change, Stories from the Field, Strategies, Team building on Mon., Jul 11, 2011

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