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Rattle Wraps: Patient Advocacy for Infant Caregivers
Name of Organization, Agency, or Institution
Primary Contact Name and Title
Mary Ellen Mannix, Founder & Educator
Project Aim and Goals
James’s Project sets out to reduce the US infant mortality rate and improve maternal health by raising awareness of patient safety issues in these areas. This is done by using the tools of education, communication and collaboration. Based in the greater Philadelphia area, we offer Patient Advocacy for Infant Caregivers classes (called “Rattle Wraps”). These community based education classes offered to expectant parents, grandparents, guardians, and clinicians offer insights & information on best practices & communication to safely navigate the healthcare system with an expectant parent or new baby.
We are also developing online curriculum for moms, dads, patients, clinicians and families. We also offer bedside advocacy and healthcare coaching during hospitalization and active treatment. Finally, James’s Project is a catalyst in the movement towards transparent dialogue post-treatment between physicians and patients to ensure healing for all involved. Restorative conferencing, Family Group Conferencing and Family Group Decision Making are models used in other industries that are successfully adapted for use in the healthcare setting.
Blueprint Area(s) Addressed
- Coordination of care across time, settings, and disciplines
- Decision making and consumer choice
- Scope, content and availability of health professions education (includes continuing education for health professionals)
- Clinical practice guideline or policy change
- Community education/outreach
- Consumer advocacy or political action
- Educational materials for health professionals
- Risk management or liability reform
- Shared decision-making
- Staffing/care coordination change
- Team building or communication process change
Indicators for success will be measured by the steady increase in enrollment for the Rattle Wraps and eventually by viewing the infant and maternal mortality rates for our local area from before 2010 and after.
ARTICLES ABOUT THE PROJECT
Wayne Woman Advocates for Newborn Health Care (Mainline Media News, 10/19/10)
The real list to bring to the hospital, birthing facility or midwife:
- After 24 hours of life and before heading home with your baby, ask for a pulse ox screening for congenital heart disease (the most common birth defect affecting approximately 1 in 100 births).
- Before leaving home, make sure you have the number of the hospital or birthing facility’s patient advocate office and give it to your husband or partner. If you or your husband/partner feels ill at ease at any time, the patient advocate can help.
- Understand what the Family (or Patient) Activated Rapid Response Team is. If delivering in a hospital, find out if the hospital has one and how to activate it. Make sure your partner knows how.
- Bring a list of all the medications you take to the hospital or birthing facility. Ask to see the bottle of any medication given to you in the hospital.
- Keep an eye on hands. Proper hand hygiene is much more than using hand sanitizer. Hand washing has been shown to be more effective in reducing the spread of infection than anything else. You and your baby deserve an infection free start to life!
For More Information
Mary Ellen Mannix, at firstname.lastname@example.org